Syndicate content

Blogs

A Veteran Mom and Young Adult with Autism

A few weeks ago, at a Christmas art show I met a mom with two children, a 13-year old daughter and a 21-year old son with autism. Alice walked into Trent’s art booth and expressed her fascination with Trent’s art. I asked about her son and with enthusiasm in her voice, she spoke of how Rodney loved to draw. Alice talked about his fascination with the Chicago Bears team clothing, an athletic shoe, and the rock bands he downloads on his I’Pod. She then reluctantly talked about how her son became a ward of the state.

A Call to Artists: Integrating Autistic artists as valued members of the arts community.

Autism should not keep the brightest artistic minds of our generation under lock and key. Every time I go to a big Autism conference I am always in rapture with the unique artistic creations persons with Autism are making. To me, it makes perfect sense how an individual with a unique perception of the world would be able to generate works of art that are other worldy. Throughout history, this type of creativity has in many instances been highly sought and highly rewarded.

Too Close

Originally titled, “The Year of the Fat Toad” this blog was going to be a roundup of stories, dustups, craziness, highlights, lowlights, misfits, and observations for 2010.  Not this year, perhaps next.   
 
Autism came a little too close, tonight. Too close to allow me the comfort of other thoughts.
 
My younger son has seizures.

A Program Note

This month on Injecting Sense: The Radio Edition, we'll be talking with Lori McIlwain about the problems faced by caretakers of autistic individuals who wander or run off. I'm also reserving a little time to editorialize a little about my favorite shill and his pals. Join us this Tuesday, December 28th, at 1:00 p.m. EST, on Autism One Radio (or catch it later in the AO Radio archives).

Christmas Shopping: Self Determination in Action

Last weekend Trent stayed with us at our home as Jason his roommate had a weekend off. Saturday night (six days before Christmas) my husband and I planned a shopping outing to give Trent another year of purchasing gifts for family members. He is 33 years old, and shopping now seems so normal and ordinary, often free from real challenges. In years past I recall responding to this adventure with uneasiness, because Trent’s idea of shopping was getting new clothes for himself. His anxiety in those days increased when I encouraged him to look at gifts for his brothers, his dad, or for mom.

New NuLife Survey & Discount www.nulifefoods.com

NuLife Foods has a new survey about some exciting breakfast, lunch, dinner and snack possibilities!
Please see
www.zoomerang.com/Survey/WEB22BMUT3PE6D/

NuLife wants to hear what you think about their new gfcfsf product ideas. If you participate in their survey -- only two questions -- you'll receive a special money off coupon code at the end!

Alison Singer Shill Threatens AutismOne

A number of years ago Alison Singer burst on the scene as Communication Director in a fundraiser for Autism Speaks as the overwhelmed parent ready to drive off a bridge with her affected child onboard.
 
I advised parents to ignore her message of despair. My recommendation to parents remains in effect.
 
Ms.

My 20 year old daughter is doing very well in adult foster care in Eagan Minnesota

I have been an advocate for autism most of my daughters 20 years. I have gone through so many things as I am sure many can say, HOWEVER, there are not many things out there for the autistic young adult.., I believe I am pioneering the trail. SO I invite you to ask questions as my daughter was the first compared to many of you out there, who transitioned into adulthood. Please use my experience to ask me quuestions so you dont have to ride the tough unchartered waters as I have.
She is doing extremely well.

On Individuality and Illness

We respect individuality, but we do not disregard illness. When my son and I lock gazes, looking deeply into each other's eyes, I lovingly tell him he's perfect. But I know from a recent dental exam that he has cavities, and I am not going to neglect the pain and adverse health consequences that these can give him if left untreated. We know through objective laboratory and other diagnostic testing that children with a label of autism have things going on in their bodies -- analogous to cavities and which we would treat for any child, neurotypical or labeled with autism.

Tips for my single friends... falling in love with yourself this winter season..."You complete you."

“You complete me.” “You had me at hello.” As I think of these phrases from that movie especially during this winter season I wonder why we set ourselves up for counting on someone else to fulfill us. Many in the autism community are single and what does that mean if you don’t have that “somebody special?” Does it mean that you aren’t complete in some way?