Another rough day
Today was very rough. It was full of meltdowns and angry reactions from my son. I just feel lost. I was chatting with a friend earlier tonight and she is well-meaning and very supportive. She told me to take one day at a time and not worry about the future. I wish I could. Every day I feel the need to push my son to do more, be better, talk more, feel more. I worry about his future and how he will be able to function. I feel such guilt if I do not constantly interact with him. I cannot just think about today when I have such doubts of tomorrow. I don't think she can understand the stress I feel. I love her dearly though for trying. She is such a wonderful soul sent from God above.
Praying tomorrow will be a better day!
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Support
I am very familiar with your doubts about what is going to come and also find it impossible to find others that fully understand how we feel. I think it’s wonderful you have a friend that is trying so very hard to help. Not many of us do. If I can help you in any way you are welcome to send me an email.
My hope for tomorrow is what gets me through today.
Dear Lilli - What you are
Dear Lilli -
What you are feeling is perfectly natural. As milestones are missed and behaviors escalate thinking about today is mixed in with a million doubts about tomorrow. When my son was younger I called it living on the event horizon of autism.
God bless your friend, but she does not understand what you are feeling and day by day is not a future, it’s survival mode. You need a plan. First, you need to let go of the guilt. Getting your son better is not a sprint, it is a marathon – and you will get him better.
The plan needs to start with diet. Your son’s meltdowns and angry reactions are the result of pain. In all likelihood it is gastrointestinal distress. A few other triggers are auditory insults and environmental allergens, but the primary problem is most often diet.
Please feel free to contact me and we can go over in greater detail some of the difficulties your son is experiencing.
Power Point Presentation
You might want to take a look at the Power Point Presentation just posted.
Letting Go! The Journey back to Grace and Dignity. Finding "balance" after the diagnosis.
Along the road toward recovery, a parent/caregiver finds their sense of grace and dignity has taken a back seat to the health and well being of their child. The parents' health suffers, as often does the marriage. Family dynamics are changed and challenged. This presentation will alert parents/caregivers to the odyssey toward their child's recovery and the toll it can potentially take on the caregivers' health and marriage. The presentation will offer well-honed strategies to stay connected as a couple, stay connected to the other children in the family and provide a sense of relief over the everyday stresses that come with the autism diagnosis. The topics discussed in this presentation are not commonly covered in autism conferences but are still very much a part of the autism diagnosis. It is recommended for parents feeling the daily stress due to the demands associated with their child's autism. It is also recommended for couples who are seeking a different perspective on how to overcome the toll autism has placed on their marriage. Traditional marriage counselors are not equipped to address the unique issues that arise after a child has been diagnosed. The strategies discussed in this presentation will be sure to put a smile on the face of all who attend as they find the tools to "balance" after the diagnosis
Power Point Presentation
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