Nonverbal Child To Talk Again??
How do you get a nonverbal child with autism to talk again?? I have tried almost everything!! My daughter is going on 9, and still not one word?? I have tried chelation, GFCF, biomed, mb-12, supplements etc... etc... Nothing?? Some people tell me stem cells works miracles?? Is this true?? I think you need to find something very strong to undo what they have done to my daughter. Mercury is the second most toxic substance on earth!! How can you fight that with biomed or anything else for that matter?? It like trying to fight a wildfire with a garden hose. Why don't they have adult and Umbilical Cord Blood stem cells in the U.S.A.?? I hope change is coming soon!! My daughter is sinking deeper and deeper into the autism abyss!! What the HELL am I doing wrong!?! I need some recovery that everyone is talking about?!?!
One more comment to make it a
One more comment to make it a even 30!!!!
Getting Involved!
I believe this is the first blog post to hit over 15 comments.
(If I am incorrect and as long as I think I’m right, I’m good)
Polar Opposite
Sandy,
Please do not take this as a post taking away from you situation! I really do feel for you and can not begin to imagine the pain you must feel day to day with this. This must be a real struggle to have to overcome. You are an incredibly strong willed person to able to do this day-in and day-out.
My situation is the polar opposite. My son talks non-stop, so much so you have to step away at times. I just realized yesterday, he is saying the very thing he is thinking. There is no filter in-between.
Example: while playing a video game with him it goes like this; Man, I really wish my guy would do this, why is your guy doing that, what are they going to do next, I really wish you would hurry up, are you watching, look, did you see that, can you go this way, why are you not going this way, I’m going to jump, watch, are you looking, did you see that, are you going to jump? When? Did you see all that? Are you watching, look, what do we do now? I am going over this way to see what’s there, wait I’ve seen this before, oh, no I haven’t, what do we do to win? Look, watch, are you looking? Did you see that? Is that the coolest thing you ever seen? what is? Are you coming? Are you watching? Look, look, look, I know this is the coolest part (which is something he never seen himself before) I really wish you would stay beside me, are you staying beside me, what’s you favorite move? No, what’s you favorite, favorite move? Well what if that wasn’t there what would be your favorite move? What’s your all time favorite move ever? What if this was real? What would you do? Want to start over, why not; I think I know what to do now, do you? Are you looking, did you see that? Want me to do it again? watch, think i can do that for real? can you? can anyone? why? how do you know? [Time-lapse is less then 2mins]
This goes on and on….
There really is no filter from brain to mouth. The thought he is thinking is said verbally. I am not sure why but yesterday was extremely draining for me. This was all day… I know I am very blessed to have a child able to talk and am not in any way suggesting otherwise. I just feel beyond wore out from this.
Believe me, you would rather
Believe me, you would rather have him talking!! Nonverbal is much worse!! You have to guess on everything!!! It's exhausting!!
You Are Right
You are correct. One can not know what something is like until they themselves are dealing with it. I am not able to feel your pain the way you do nor can I tell you it will be ok. This is so very hard for you. I can only offer my support and let you know I am here to lean on. I wish I could do so much more.
Thank You Julie!! It's over
Thank You Julie!! It's over 20 comments now!! A new world record!! lol
Yeah, both situations are
Yeah, both situations are bad. There has to be a answer on how to deal with this ordeal??
Suggestion
I just may be up for doing like a day swap. Any takers?
I like that idea. But, I
I like that idea. But, I want a normal family for awhile.
Saving Gabe - I get it!
Only parents with children who go on and on and on... can appreciate and laugh about your post. Katie stopped talking at about 17 months (in my situation, no relationship to vaccinations) and then at age 3, she started speaking in sentences and has not stopped since.
Just this morning at 3:00 a.m., I was bounced out of bed with a screaming, "MOMMY! MOMMY! MOMMY! I itch, I itch, I itch!
Oh, my gosh, I jumped out of bed with a major panic attack, heart pounding. Thank God I don't have heart disease!
Even after I finally had her settled, slathered with aloe vera for her sensitive skin, I couldn't sleep because the adrenaline was flowing.
Our kids are all so different. We all wrestle with the anguish of those who don't speak and are drained by those who are speak in a pedantic and repetitive manner.
You did not vaccinate her??
You did not vaccinate her??
Vaccinate...
Thanks for reminding me Sandy! I was going to ask just that. Gabe also stopped talking at 18months for about 3 months. It was not right after the shots but it was a few weeks after. I find it unlikely they are not related. Given so many of us have the same story to tell.
Perceptive
I hate to say it but at times it is too much for me. Sooo much information coming from him with 85% being just thoughts or even questions he just asked me for the last however many months everyday. I assure him my answer has not changed and he does know what it is. I was going to add some of the things asked but I think it’s a better fit for a blog post (Coming soon).
Does this constant talking ever just wear you done too?
At the risk of being leveled by the opposition...
Yes, we did vaccinate Katie. I saw problems long before even the first vaccination. Nothing changed after and I support the current medical findings. My support came after years of sifting through the information,both pro and con. I read the Swedish double-blind studies. Through UCLA's genetic profiling, I saw the links with family members through the generations who would today be diagnosed on the spectrum, including those who were not vaccinated.
I am not here to argue that I am right. Only to be surrounded by people whom I respect for their dedication to their children. Regardless of how or why or when the children's neuropathy took a wrong turn.
I Respect Your Opinion
I respect your opinion but, I wanted to ask you one question. You say you saw problems long before even the first vaccination. My daughter Candace received her Hepatitis B shot a week after she was born, some get it the first day!! When did Katie get hers? If you don't mind me asking??
Hep B
Katie (age 12) did not receive this vaccination until age 3. I had received mine prior to traveling to Vietnam to adopt her brother, Jamie, in 2000. Upon my return, Jamie was 7 months and received vaccinations that he may not have been given in Vietnam. Katie was also vaccinated against Hep B.
Jamie is not on the spectrum.
When did Katie receive her
When did Katie receive her first vaccination?? Just wondering??
Vaccinations
Without looking through my files and pulling from both my experience as a pediatric nurse and mom to 5, her first vaccination took place at around 8 weeks of age. Katie was unlike my previous babies from birth, both physically and physiologically.
In the interest of your questions, I am hopeful you are not attempting to "connect the dots" of vaccinations in relation to my daughter. Following our genetic studies at UCLA, we were able to connect Katie's neuropathy to many family members through several generations.
I do not have the emotional energy to argue this point over and over again. I support those who believe there is vaccination causation, I, however, march to the beat of a different drum.
The Beat Goes On
I respect your opinion, only you know what happened to your child. But, I have to clear this up about me. If you don't think vaccinations cause autism, I'm fine with that!! If you think vaccinations are good. Great!! Go get vaccinated twice if you want, I'm fine with that!! If you think autism is genetic, wonderful I'm fine with that too!! I will not try to fight with you or attempt to connect anything. I was just asking a question. I feel that my daughters autism was caused by vaccinations, that's my drum beat, and the beat goes on!!
I won't rain on your parade...
What I think is completely irrelevant. What we do to care for our children is very relevant.
In this endeavor, we are all the same. We continue to move forward with the same goal. We want our children to have a fulfilling life within the confines of their individual neuropathy.
I don't have any less or more pain than you experience and I certainly have no intent of minimizing the challenges you are facing.
For two years, I thought anecdotally. One day I decided that I cannot move forward if I continue to look back for "what if?" or "why?".
For me, I was becoming less and less productive. I knew that in order to help my daughter, I had to focus on today and tomorrow.
This is my story. It carries every bit as much love and pain as every story of every family with a child in need.
Your story is about your child. Every bit as valid as the story of the child we will read about tomorrow.
It's no parade!!
I don't know what you would call what I'm going through but, parade is lurking down near the bottom of the list. I can move forward and know what was behind me at the same time. I do want the best for my daughter that is why I have to be her voice. My daughter will have her day in court!! If what I think is true than someone must take responsablity for the great harm they have caused her. And that I do not forgive or forget.
Lucky girl
Your daughter is very lucky to have you. Happy birthday, Candy!
Thank You!!!
Thank You!!!
Support From Me Regardless
Please don't feel like the odd man out. You are very much entailed to have your own opinion. No one should ever be forced to think the same way. Otherwise we would all be the same. I value your own take on things as I couldn't know what you do about your own situation. Keep your voice, regardless of others say you should think and do not feel you have to apologize to anyone. This is how you feel and I very much respect you for saying so. Do not let anyone make you feel bad for this either.
Kudos for speaking up!
Thank you, thank you, Julie!
I was so nervous about reading a response. I realize that I am in the minority on this site with my views. I am happy to be here among you all, comforted by the kind words, loving support and fighting spirit we all share.
There is no minority on our Team!
I am sure you do feel a little out of place due to many posts being about vaccines. I can’t imaging anyone would try to convince you to change you view, but if it happens overlook it. Who are they to say what you should or shouldn't think? It’s just a person’s opinion who knows nothing of your own situation. Some people have the need to force their views onto others.
In the end, we are all standing in the same spot; it doesn’t matter how we all got here. It’s what we do from this point that matters. Supporting each other in the good, bad, ugly and if possible finding a way to add humor into what is a very difficult life we live. Again, I commended you for having the courage to stand and speak up for yourself!
I meet this mother at Easter
I meet this mother at Easter Seals, she had the same problem. She was going out of her mind!! She could not even take a bath without her son trying to talk to her!! She said she needed time apart like a after school program.
The three developmental
The three developmental levels of children behavioral responses to common objects which characterize their advancing conceptualization in the early years are described. The article relates verbal development at the three sequential levels for use in evaluation. Examples of behavior patterns at each level are provided and an approach to promote the child's cognitive response to familiar household objects is suggested.
70-431 exam | 70-290 exam | N10-004 exam
We tried it!! It don't work
We tried it!! It don't work for Candace??
She use to say words and name
She use to say words and name things. But, that is gone now??