Autism and Sexuality

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AUTISM AND SEXUALITY
Observations on Succeeding in the Challenges  of Intimate Relationships for People  on the Autism Spectrum
Autism One Conference 27­30 May 2008 Chicago, IL Presented by Stephen M. Shore, Ed. D.
www.AutismAsperger.net
www.ChristinaAdamsWriter.com
Christina Adams
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A U T I S M    &    S E X U A L I T Y
Introduction – Stephen Shore
The Autism Bomb
Loss of speech & tantrums
Self­stims
Environmental withdrawal
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T H E   A U T I S M   S P E C T R U M
Severe Moderate Light
Increasing Variability of Presentation Kanner’s T w i c e PDD-NOS HFA/AS 3
Rosenn, D. (1997). “Rosenn wedge”. From Aspergers: What we have learned in the ‘90s conference in Westboro, MA.  Used with permission
E x c e p t i o n a l i t y
A U T I S M    &    S E X U A L I T Y
Introduction – Stephen Shore
AGE E V E N T S
0
Typical development Turn over at 8 days Rapid physical and motor development
1.5
Autism bomb hits Withdrawal from environment Tantrums
2.5
Putnam evaluation of atypical developmen t, strong autistic tendencies & psychotic Early intervention from parents who refute recommend ations for removal from home
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Enter Putnam Condition improves to “neurotic” The wonderful world of watch motors Echolalia and return of speech Eating baby food
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Kindergarten Social & academic difficulties Discovered making a mess of myself while eating BBQ chicken wings Loved cats but dogs… Yikes bikes!
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Cracking rocks Special interests in astronomy and weather Teacher concerns for reading and math difficulties
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Concern about dropping the letter “e.” My friend says “he feels like a pizza” and I argue with him that he does not look like a pizza and probably does not feel like one either
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Middle and high school Finally getting it together but still often in left field Discovering the band room Time to focus more on people and not their bicycles
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College More friends Dating Others really do think differen tly Utopia!
Completed a doctoral dissertation on comparative approaches for working with children on the autism spectrum
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A U T I S M    &    S E X U A L I T Y
Introduction – Christina Adams
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A U T I S M    &    S E X U A L I T Y
Talking About Sex ­ Myths of Sexuality ­ Peter Gerhardt
Common Myths
• Persons with autism… ­ have little to no interest in sex ­ are hypersexual ­ are solely heterosexual
But the Truth is…
• Persons with autism are as diverse  sexually as everyone else ­ and, sexuality education is  complicated by challenges in  language, communication, and  social differences.   While sexual feelings and  interest may be high, a primary  information source is usually not  available – non­spectrum teens  (Volkmar & Wiesner, 2003). ­ With proper support people with  autism can have relationships;  often with a person having a  difference.
So… How can we help  people on the autism  spectrum deal with this  important part of life?
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A U T I S M    &    S E X U A L I T Y
Talking About Sex ­ The Tapestry of Sexuality
Sexuality is a part of life and is as developmentally  appropriate for people with autism as anyone else.
Heterosexuality Homosexuality
Bisexuality
Asexuality
Everyone has a piece of each.  It’s just a matter of degree.
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A U T I S M    &    S E X U A L I T Y
Talking About Sex ­ Topics to Cover ­ Peter Gerhardt
1. Public versus private behavior 2. Good touch versus bad touch 3. Proper names for body parts 4. Slang names for body parts 5. Personal boundaries 6. Masturbation 7. Social skills and relationship building 8. Avoiding danger and abuse prevention 9. Dating skills 10. Personal responsibilities and values 8
A U T I S M    &    S E X U A L I T Y
Circle of Relationships
Stranger Acquaintance Friend Family ­­>Significant  other
Passerby,  Classmate, Coworker,  Fellow Commuter Neighbor Classmate, Coworker Close Neighbor Classmate, Coworker Mom, Dad,  Sibling, Other
Boy/Girlfriend,   Fiancé, Spouse
Develop a social  narrative 9
A U T I S M    &    S E X U A L I T Y
Friendship, Romance, and all that “Other Stuff” ­ Teresa Bolick, Ph. D. Before you talk about sex you need to talk about closeness • • • • • • • Listening is the most important skill for friendship and romance. Good hygiene is probably the second most important skill. Close friends talk with each other about life experiences. Close friends can “agree to disagree.” The most important part of “boyfriend” or “girlfriend” is “friend.” Showing interest in another person is a terrific way to flirt. Being “revved up” can get in the way of friendship and romance.
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A U T I S M    &    S E X U A L I T Y
Friendship, Romance, and all that “Other Stuff” ­ Teresa Bolick, Ph. D. • • Never touch a friend unless he or she says it’s all right. If you feel uncomfortable about someone’s actions (or your own), tell a  trusted adult. LAST BUT NOT LEAST, “Stop” means “Stop” and “No” means “No.”

Those with autism are people too… Perhaps just more so.
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A U T I S M    &    S E X U A L I T Y
Talking About Sex – Jerry Newport
When?
Look for signs of interest • • • • • Suggestive clothing Stickers Books and magazines Questions and comments Signs of Masturbation
Great subject for incidental teaching!
Life-long conversation
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A U T I S M    &    S E X U A L I T Y
Talking About Sex – Jerry Newport
How?
Sex is a normal yet a very private act and is clean. • • • Discuss in a developmentally appropriate manner ­ Find the balance between not too much and not too little Make sure you understand the question(s) being asked Explain in a matter of fact manner
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A U T I S M    &    S E X U A L I T Y
Talking About Sex – Jerry Newport
Helpful Hints for Discussion
• Use simple visual aides to help explain male and female anatomical  functions ­ People with autism tend to be visual. Sex is a part of growing up to be discussed at the proper place and time Responsibility in… ­ Seeking ­ Having ­ Respecting the wishes of potential and actual partners
• •
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A U T I S M    &    S E X U A L I T Y
Talking About Sex – Jerry Newport
Helpful Hints for Discussion
• Validate feelings of… ­ Fear ­ Possible loneliness from being left out socially ° For women especially — using sex as a way of gaining acceptance Share your own experiences as appropriate… ­ Successes ­ Mistakes You are there to provide nonjudgmental support in times of… ­ Further questions ­ Emergencies


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A U T I S M    &    S E X U A L I T Y
Talking About Sex – Masturbation ­ Peter Gerhardt
Redirecting Inappropriate Masturbation
• • • Interrupt the behavior as early in the chain as possible Remind the individual as to the parameters of time and place Redirect the person to… A. B. C. • • • activities requiring the use of both hands activities requiring preferred levels of attention, focus, or physical  movement the appropriate place for that activity
Make the alternate activity intrinsically reinforcing Consider scheduling “alone time” in their room if appropriate Avoid redirection to places other than an individual’s bedroom (e.g.  bathroom)
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Helping Sam Get a Date ­ Case Study —Relationships—
Sam is 16 years old, plays the tuba, and has recently taken notice of a cute flute  player in the band.  He has shared with you that he would like to get to know her  “better.”  Sam has told you a number of time he would like to see “more” of her  and you sense that he just can’t quite bring himself to say that he wants an  intimate relationship.  He’s even talked about the possibility of marrying her.  Sam  also revealed to you that she declined his offer to take her out for a hamburger. As Sam’s confidant, what are some things that you can suggest to Sam about  romantic relationships and how he might be able to get a date?   • Please do the following…  1. describe what and how you will tell him about intimate relationships, and,  2. suggest how he might increase his chances of success for a date, and, 3. how to tell if she is not interested and what to do about it.
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FRIENDSHIP, DATING, & SEXUALITY
Talking About Sex – Resources Aston, M., The other half of Asperger Syndrome. Hénault, I., Asperger’s Syndrome and sexuality: From adolescence through  adulthood. Hendrickx, S. Love, sex and long­term relationships: What people with Asperger  Syndrome really really want. Lawson, W., Sex, sexuality and the autism spectrum. Mesibov, G., The TEACCH approach to autism spectrum disorders. Newport, J. & Newport, M., Autism­Asperger’s and sexuality: Puberty and  beyond. Shore, S., & Rastelli, L., Understanding autism for dummies.  Sicile­Kira, C., Autism spectrum disorders: The complete guide to understanding  autism, Asperger’s Syndrome, pervasive developmental disorders, and  others ASDs. Wrobel, M., Taking care of myself: A hygiene, puberty, and personal curriculum  for young people with autism.
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Current understanding is that

Current understanding is that many species that were formerly believed monogamous have now been proven to be promiscuous or opportunistic in nature. Thanks for sharing.
Regards,
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Human sexuality can be

Human sexuality can be described as the way someone is attracted to other people. It used to be believed that human sexual behavior was different from the sexual behavior of most other animals, in that it was practiced for reasons besides copulation. Thanks.
Regards,
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Useful info with lots of

Useful info with lots of interesting things conserning people with such illness.
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